
There is a range of support and information on offer from discussing financial arrangements to providing blue badges for parking. Sources of information include local councils, your GP, solicitors, charities and books. Please see the sections below.
The books in the Chiltern Compass Library can be borrowed from the Chapter Two Community Bookshop in Chesham, Buckinghamshire (HP5 1EP).
The Chiltern Compass Library
‘Dying to Know’ – Andrew Anastasios – 60 illustrated thoughts that reflect on bringing death to life (2007)
‘The D Word; talking about dying’ – Sue Brayne – A guide for relatives, friends and carers who are likely to be or currently involved in end-of-life care (2010)
‘Bittersweet; how to turn sorrow into creativity, beauty and love)’ – Susan Cain – An exploration of the importance of letting grief in and using it to improve creativity and connection (2022)
‘When the Time Comes: stories from the end of life’ – Dr Magnolia Cardona and Nurse Ebony Lewis – Short patient stories illustrate this roadmap for the end of life (2021)
‘Dear Life; a doctor’s story of love, loss and consolation’ – Dr Rachel Clarke – A memoir by a palliative care physician about the death of her father and the role of hospices in life and death (2020)
‘The Story of a Heart’ – Dr Rachel Clarke – The unforgettable story about how one family’s grief transformed into a lifesaving gift by the transplanting of a heart from a young girl to a young boy (2024)
‘Assisted Dying’ – Edited by Lesley Close and Jo Cartwright – A series of essays from specialists in the field making the case in favour of assisted dying (2014)
‘Moments of Meaning; living life while facing death’ – Jill Cox – Vignettes of her own and other people’s stories, which illustrate the challenges and coping strategies associated with a life-limiting diagnosis (2017)
‘End of Life; a guide’ – Marie Curie Cancer Care – This booklet explains what happens at the end of life and how to plan for it (2013)
‘The Welcome Visitor; living well, dying well’ – John Humphreys and Dr Sarah Jarvis – This book confronts the challenges we face as a result of medical advances and longer life expectancy – ‘the first step must be that death can be as welcome as inevitable’ (2009)
‘Living with Death without God’ – Valerie Jack – A revealing series of interviews investigating how to navigate death without the support of a religious framework (2023) – as featured in the Chiltern Compass Conversations series
‘With the End in Mind’ – Dr Katherine Mannix – End-of life stories from a palliative care consultant which provide insight into how to die well (2017)
‘And Finally; matters of life and death’ – Henry Marsh – a memoir about the impact of a terminal diagnosis on a neurosurgeon and how it has shaped his views on life and death (2022)
‘One Last Thing; how to live with the end in mind’ – Wendy Mitchell – Living with a diagnosis of early onset dementia, Wendy explores all angles of death and dying – ‘To get on with living we need to talk about death’ (2023)
‘The Book about Getting Older’ – Dr Lucy Pollock – a common sense guide about how to navigate later life (2021)
‘Write It All Down’ – Cathy Rentzenbrink – How to put your life on the page (2022) – as featured in the Chiltern Compass Conversations series
‘The Last Act of Love’ – Cathy Rentzenbrink – A devastating memoir about the prolonged death of her teenage brother, the affect it had on her and her parents and how they eventually came to terms with it (2015)
‘Advance Care Planning in End of Life Care’ – edited by Keri Thomas, Ben Lobo Karen Detering – An in depth analysis of Advance Care Planning as implemented across the globe (2018)
‘The Later Years’ – Sir Peter Thornton – A simple guide to organising the rest of your life (2025)
‘Badgers Parting Gift’ – Susan Varley – A picture book for children to help understand death and grief and how to come to terms with it (2013)
‘Healing Grief; a guide to loss and recovery’ – Barbara Ward – Full of sound advice about how to cope with loss and grief (1993)
‘A Matter of Death and Life; love, loss and what matters in the end’ – Irvin and Marilyn Yalom – A memoir by a world-renowned psychiatrist and his wife concerning her death (2021)
Your GP and the primary care team are pivotal to advising and arranging practical help for you to stay in your home at the end of your life. They will advise particularly on advance health and welfare directives.
Speak with them to get access to general advice including pain management programmes or a referral to palliative care. Your GP may also be able to refer to your county council for help with home adaptations (stability bars; hoists).
It is vital that they know your wishes and they should have a copy of your instructions to keep with their records of your care.
There are allowances and benefits that may be available depending on your circumstances. These are available through the UK government and their website has comprehensive information. For example, there is a carers allowance which is assessed and paid according to need. It is paid to the person needing care to be used to meet any additional costs. There are also other payments and benefits available. Read more information on all benefits.
Your GP may be able to refer to your county council for help with home adaptations (stability bars; hoists). The local authority may be able to help with meals; laundry; home adaptation. Bucks County Council services link.
Many conditions have specific organisations and groups with information and forums which will address the issues and needs related to that condition. Diabetes, stroke care, dementia and Parkinson’s disease are an examples of many others. It can prove an understanding source of support and advice.
Increasingly they too are addressing the issues of end of life concerning their members and may be able to offer disease specific advice.
Remember that blue badges may also be issued temporarily in case of illness and restricted mobility, not just by age or disability.
The Red Cross or Age UK may be able to loan mobility aids (wheelchairs; Backrests; Bath seats; Walking sticks and frames; Commodes; Bedpans; Urinals) for short term use for a donation. They may be able to deliver for a small fee.
They may also be able to help with information or products for home adaptations such as stability bars & hoists.
Age UK’s website is full of valuable information and well worth a visit in its own right.
Please refer to ‘Instructions and plans’ to consider what legal documents you may wish to put in place with regard to your health and welfare and any other administrative issues that you want to officially record and whether you want this to be completed with the help of a solicitor or a responsible charitable organisation who can offer legal help. If in doubt contact them.
Local hospices provide information and support and practical help for end of life care, respite care and caring in your own home and will be able to discuss pain management programmes. Set up to help only with cancer many of them are advising and helping with the end stages of other chronic conditions. It is possible to get a referral through your medical professional. For further and more general information, please see Hospice UK
The Compassion in Dying website has a lot of practical resources and templates.